If you thought that your health care would improve by sharing wearable data would you do so? Do you trust the data and do you think a GP would?
I would find it useful, and the idea that the GP could monitor my health without appointments would be good. However most wearables can only do heartrate and exercise, so not sure how useful they'd be (I have asthma and lung function tests are what the GP needs). I would worry about the NHS's ability to keep that data safe though.
As someone with a chronic illness, I would share the data stored within my wearable technologies with my GP and Consultant. However as someone who works in IT, I would have reservations about how the quality of data would be interpreted and have issues around data security between multiple devices.
I guess the question originally meant "do you trust [that the data is accurate and faithfully represents your health state]?~, and that's an interesting question; but it's also linked to the question "do you trust [that the data hasn't been tampered with or siphoned off elsewhere]?"
Both of those questions rely on having a robust secure infrastructure - this question certainly feels more topical after recent Home Office calls to allow Governments to break into secure communications.
Ultimately, yes, I'd like to rely on both the security and the integrity of the data captured by wearable health technology, but we also need to know that the capturing device is accurate as well as being secure; how do we guarantee accuracy when users may fit and use devices improperly? I don't think we're there yet.
With the usual caveats, I would willingly share my data with my GP.
I'd like to see more of this in the future, for example, it would be good if emergency responders could also access the data of the patient they are called out to treat (heart attacks, strokes etc.come to mind).
Eventually in Utopia, sharing data with insurance companies (don't panic) could be used to provide personalised quotes and create target specific insurance products.
I'd have to agree with Martin - caveats of privacy and security are essential.
When I'm not able to control my data it makes me nervous, it often means that the organisation who hold my data are themselves unable to control or track easily where my data is going or being used.
It would be cool if when I go to the GP, I could share the app data (temporarily) which has been monitoring my health (without the data leaving my phone) - it might even flag to me when I should see a doctor. If all good, I might decide to take the data home without it ever leaving my phone, if additional tests or care are required I might extend the duration of use for specific services.
During my appointment the doctor, receptionist or ‘health technician’ could talk to me about causes for which my data could support – I might then also agree to donate my data, either by selecting to anonymously share, along with other interesting things on my phone, and or share more personal information in the knowledge it will be used for a worthy cause.
All that said, I’m 29 and have never (knowingly) used a health monitoring app! But if it meant I could support a charity without having to run a marathon, I might just give it a go.
I’d certainly be very keen to share my data with my GP – caveats about security and privacy applying. I’d hope my GP would be able to spot I was becoming ill by looking at the data and so help me to take preventative action.
Do I trust the data? At the moment probably not. My tracker is an early generation device – it mistakes cycling for walking and sometimes fails to record my activity.
But technology is always improving.
I can well imagine a situation whereby it’ll take a good number of years for primary – and possibly secondary care – to develop ways in which they can draw in data and learn from trackers. By then trackers themselves will doubtless have evolved in terms of accuracy and features.
But yes, I most certainly do trust the idea that GPs using tracker data will help us manage our wellness.